I had a several dr. appointments last week. It is amazing how differently each one can view the same situation. I came away from one specialist feeling completely hopeless...but ended the day after another specialist who gave such a different opinion and my heart felt so much more peace. That day, he was talking about continuing the IV nutrition (called TPN) and some other IVs. I just felt like I needed to ask him (and basically BEG him) to just unplug me completely and allow me to try to eat on my own. The TPN had been making me violently ill and I was getting the strongest IV anti-nausea meds that there are. I just didn't feel well at all and had dropped quite a bit of weight.
Anyway...he let me get rid of the IV's and try a week with NO extra medicine...and it has been WONDERFUL! I haven't vomited even once since that day and have been able to eat. Matter of fact, I have been starving and have even had to wake up in the middle of the night for a snack. Just this week alone, I gained 8 pounds back...which was needed!!
I have the sheer joy of our wooden friend Pinocchio as he exclaimed "THERE ARE NO STRINGS ON ME!!!!!! Though I technically still have a drain...at least there are NO IV's. It was so hard to push that IV pole on the carpet around my house, plus carry a separate 15 pound back that held the TPN and pump, plus carry the wound vac unit. I felt 115 years old and just needed to unplug so that I could FEEL a bit more normal. I was worried I would crash, but wanted to try...and it worked.
Momentum has shifted and each day I am getting stronger. I still have a hole in my bowel and an open hole in my stomach that goes from the outside to the inside of my abdominal cavity. I am still very weak and tire easily, but....I can see the SUNSHINE!!!!! Mental strength is half of the battle in these cases, and I feel so much more able to carry on!
I even got to go walk around target until I almost passed out. That was my FIRST time out of the house other than the HOSPITAL in over 2 months. Yesterday, I even drove myself to an appointment. I had been so medicated and weak that I hadn't driven in months. These might not sound like much ...but to me they are HUGE LEAPS in a positive direction. I have a long way to go...but I am on my way!!!!!!!